Jake “JJ” Alongi
6-month-old Jake (JJ) was born prematurely, weighing 1lb 6oz. He has gone through numerous battles and is still battling health issues. He’s had multiple brain scans that revealed 2 separate brain bleeds. JJ was diagnosis with PVL (Periventricular Leukomalacia). Babies with PVL have a higher risk of cerebral palsy and may have learning difficulties and other developmental problems.
Recently JJ was also diagnosis with spontaneous bowel perforation and will need to have GI surgery to fix his intestines. Jake is an inspiration to everyone. We continue to choose faith over fear as we watch him display his endurance and desire to live for and his twin brother Logan who lost his battle at 25 weeks.
Noah is a 10 yr. the old boy who had suffered from a rare heart defect Hypoplastic Left Heart, Double Aortic Arch. Recently Noah was blessed with an organ transplant and received a new heart. Noah still has a long road ahead making sure his new heart has no complications. Noah also suffers from Kabuki Syndrome, a rare congenital disorder. Noah is strong, brave, and always has a smile on his face.
Tommy is 10 years old. He was born prematurely weighing 1lb 13 ounces. He spent 120 days in NICU fighting for his life. Tommy has been diagnosed with Spastic Quad Cerebral Palsy, Epilepsy, Cortical visual impairment, and Periventricular leukomalacia and is classified as having multiple disabilities.
Thomas is nonambulatory and therefore requires a wheelchair for all his mobility. He is also nonverbal and needs round-the-clock assistance for all activities of daily living during the day and night. He is a happy and determined boy who works extremely hard to overcome his challenges. He loves being outdoors, listening to music, swimming, and going for walks, and spending time with his family.
Sadly, Thomas recently experienced the unexpected tragic loss of his father in May 2020. Being that his father was such a huge part of his life, his family is doing everything in their power to help support Thomas in any way they can.